Tuesday, July 26, 2011

one pot meals, virtual choir, wingin’ it, the winds,
way too many porker carts, an evil god,
and shootin’ the boss




Well, back in the dog days of summer. Know where that phrase came from? It’s the period between early July and early September when Sirius, aka the Dog Star, rises and falls with the sun. Unfortunately, so do the temperatures. Oh well, winter’s coming.


A thought on preparing meals—keep it short and simple. I no longer like to cook, let alone spend half an hour or more preparing a meal. I also have my main meal of the day midmorning, after I’m done with giving thanks. Since I get up at 5:00 for most of the year, I’m definitely hungry by 9 or 10:00. The rest of the day I’ll generally just snack. Most of my meals are prepared in one pot. Since I’m generally off the grid, water conservation is always a factor (I still only use 2 gallons a day). I eat a lot of spaghetti, buying different kinds when I can: brown rice, spinach, whole wheat (Bionaturae is great), whatever. As the water heats to a boil and the spaghetti is cooking, I’m mincing one or two jalapenos, cloves of garlic or shredding a carrot into the bowl I will be eating out of (saves washing another bowl) and getting other stuff out. Often, three minutes before the spaghetti is done, I’ll break an egg into the water so it can cook. I’ll then drain most of the water and add a big scoop of TVP to soak up the rest. From then on it varies: frozen or fresh vegetables, sunflower or sesame seeds, canned olives or black beans, canned jalapenos, Mexican style tomatoes, tofu, tepines (couldn’t live with tepines), minced onion, nutritional yeast, vegetable bouillon cube, cayenne, olive oil, balsamic vinegar, whey protein, whatever. So I start with spaghetti but it ends up tasting different. Sometimes it’s more vegetables than spaghetti. I rarely use spaghetti sauce and parmesan so it’s not like I’m having ‘spaghetti’ all the time. Just as often, I use cous-cous or quinoa. I get 2 or 3 pounds of it from the bulk bins whenever I come across a natural food store. And yep, most of it gets stored in the fresh water holding tank (Feb ’08‘useful items to have along for off-the-grid vagabonds living in small rigs’). Easy cleanup—one pan, a wooden bowl, and three utensils. It’s just one aspect of being present, living simply and paring my life to its essentials.

A few months ago I sent a link to some friends and they enjoyed the video so I’ll share it here. Some of you will have come across Eric Whitacre’s virtual choir on youtube but this link gives you the background. It’s a pleasure to watch Whitacre’s presentation. You can see he totally enjoys telling the story.


I topped my roughest road yet, by far (not that I wanted to), pulling the casita down a forest road off rt550 south of Silverton, CO, very, very rocky. We crept along taking 20 minutes to go less than two miles and the casita was really gettin’ hammered and of course, no possible place to turn around. One of those roads where the rear table bounces up off one of the legs. Someone at the natural food store in Durango had said to access this road from the north end because the south end was really rough. Good grief, the north end was REALLY rough, can’t imagine what the south end is like. Finally found a place on a short spur road and pulled in. To make the experience even more unpleasant, the ground was covered with powdered dirt. M&M LOVE rolling in powdered dirt. I HATE M&M rolling in powdered dirt. No way are they allowed in the casita lookin’ like dirtballs—baby wipes (a LOT of baby wipes!) and a wet micro-fiber towel to clean them up each time they wanted in. I never leave the cat door open in areas where they can easily get so dirty. The packed-in water lasts noticeably longer if we avoid powdered dirt and sand but some really nice spots have it. This was not an overly nice spot, however. Not bad but not worth the drive in. To make it all par for the course, mosquitoes descended and made setting up camp a real joy. After a breeze came up, I took M&M on a walk down the spur road and found out how short it was. Felt kinda boxed in here. Stayed two nights since I didn’t want to do that road two days in a row.
My rig now measures 37’ with a terrible turning radius and it’s affecting my lifestyle. Not good.


Sure am glad I got a V8 while down in Bisbee. Drove over two 10,000’ passes and one 11,000’. The Cherokee would not have been likin’ it. Colorado wasn’t working for me. The mountainous areas I was driving through offered limited forest roads and many of the ones I checked out on the maps, noticing the contour lines, looked too steep for pulling the trailer and most of the ones I tried were pretty rough with limited places to turn around and very few spur roads. I need more elbow room to get out in the sticks so the area limited my type of camping. For those who do campgrounds, it’s an absolutely stellar state to explore. But in the steep areas, even the campgrounds are right along the road; it’s not like there is an option. So—off to Wyoming. I just need to find a Wyoming DeLorme or I’m screwed. RVers and many campers get by with state road maps. I could never live my lifestyle with those. I need a DeLorme for each state. I need to know where the forest roads are. I need to read the contour lines. They help me decide routes to take and places to explore. I need to see where BLM and state land is. Nope, state maps don’t do it for me.
I felt much better once I decided to bag Colorado. I was having a tough time finding the kind of places I like and I was getting kind of bummed. This lifestyle is all about freedom and spontaneity. Can’t see how most pretty much stick to itineraries, schedules, and lists of sights-to-see. When I pulled out of Chama, I didn’t know if I was going to leave town heading west or north until the day before. It didn’t much matter. When I pull into some isolated spot, I rarely know where I will go next until I pull out the DeLorme. Different strokes. I can’t see how RVers can have any sense of adventure when they lay everything out before hand. Just sounds like a common road trip to me. Then again, I live in the west. Don’t know if I would have even thought about doing something like this if I still lived back east. Since I would not have been able to live this lifestyle back there, I might not have realized there are areas of the country where it’s not only possible, but easy. Guess I’m kinda wingin’ it at this stage of my life. Feels pretty good.

After a horrendous time of trying to give thanks while outside one morning, I stopped and picked up a screen tent. Never had one. The gnats were WAY too aggressive. Reminded me of black flies when I lived back in Lake Placid. The tent is not what I would have gotten if I had a chance to look around on the web but I figured I needed one NOW. The screen tent measures 9’x13’ and the instructions called for two people for assembly. Don’t think so. I thought 9’x13’ would be too big. Once again, I was wrong. It’s a good size for exercises and cardio circuits. For Tai Chi, it’s a joke. I keep having to insert steps to give me room. At least I can work on individual movements and transitions. My six foot table fits in there fine when I need it. Maybe this summer I will finally see if the two jigsaw puzzles I picked up at a thrift store have all their pieces. So far Meadow has only ripped two holes in the screen. One day a stiff wind came up just prior to a rainstorm and a guideline tab ripped out. That led to a broken roof pole. Once again, I thanked the gods for providing us with duct tape. After a month’s use, it is still holding up. Not bad for $40.

When I reached Wyoming, I picked up a DeLorme. Oh man, the current editions are worthless for the kind of camping I do. They don’t show nearly as many forest roads as the older editions. Luckily I have ‘90’s editions for the states I generally travel through. When I get someplace where I’ll be for a while, I’ll try to find a 90’s edition on eBay or some similar site. If one is just going to do national forest campgrounds, DeLorme is still the best thing going. Those annual RV campground guides cater to RVs (well, duh), so if you are into camping, don’t bother with them.
I’m more of less winging it here in the Wind River range. I go up a dirt road a ways, set up camp and the next day or so go off exploring on my mountain bike looking for other places to set up camp, preferably down narrow spur roads.


One secluded spot was at the end of a road with only one BIG rock to maneuver over (no way to get around it). Don’t know what the Dodge is going to look like after a couple years of this kind of stuff. The site had a strong running stream less than 50’ away. I sure do like camping with that sound. Lots of mosquitoes, though. Glad I picked up a screen tent. This spot isn’t as bad as it looks. I’m not set up that close to a road; it ends right there. One evening M&M and I were out walkin’ along the stream. I was looking over at some lingering patches of snow and when I looked back, there was a pronghorn up ahead. Way cool. I don’t see all that many while out exploring, only while driving. Another time I was working at my bench in the casita and I heard some large animal sounds that I wasn’t familiar with. M&M sat up and looked out the window. Two young moose were briskly walking past the casita, not 40’ from us. I am so thankful for all these little occurrences that bring a smile to my face. Not a bad life.

After a couple weeks, I drove into Lander for supplies. I stopped at the Sleeping Bear RV park and campground for propane. The lady also let me use their laundromat, fill my Reliance water jugs and exchange some books. For an RV park, it was not all that bad, pretty laid back and the owner was very helpful and had answers for all my questions. Then I hit the new library in town for web access. Possibly the friendliest library I’ve been in. Afterwards I checked out Wild Iris mountain sports on Main St. My kind of place. Purchased a map of the Wind River range that showed a good deal more forest roads than the new (worthless) DeLorme. After picking up groceries and more wine, it was back to the mountains and a new camping spot.


So far the day had gone well. Now it no longer did. I had come across a neat spot while out mountain biking. It was back in less than two miles but pretty rocky in spots, with some steep dips, and a stream to cross. I drove in, digging trenches with the hitch jack in four or five places and bending the rear stabilizers and the angle iron that supports the holding tanks some more, keeping in low 4-wheel drive. Make a guess here? Yep, someone was in the spot. There was not anything else in the area that looked good to me so I drove back out, with more trenching and bending.


There was another spot a few miles away I had come across while out bikin’ so I drove there and stayed a couple weeks. I don’t like camping so near a road but it ended 100 yards farther along with a tight turn around at the border of the national forest. No vehicles came by other than a few porker carts. It had some good trails for running and biking. Well, there was at first. The second week a group of RVers set up a half mile back down the road. They spent a good deal of time out on the trails on their ATVs. The next time I went mountain biking, the hills were covered in loose rocks that they had churned up and turned the dirt to dust. That was fine in that it made the climbs more challenging but it looked like shi*t.
A couple of mornings I biked farther up the mountain looking for other camping spots and came across a few that would work but nothing stellar. There sure were a lot of vacant RVs parked out and about. It kind of rots when you find a nice spot out in a national forest and find a rig parked there and the owners only coming up on the weekends. Never been anywhere where it’s so prevalent.


There are way too many RVs dry camping up in the Wind River area. I came across quite a few clusters similar to this. One thing that’s good is that they don’t venture far in so they are not going to be in the places I like to camp. However, most of them have porker carts with them so they will be driving by my sites on their ATVs. Wonder if there will ever be an open season on them. These people have no idea of why campers go off to spend time in the Outdoors.

An evil god named Tabata came up with a way to make mere humans huff-and-puff and sweat. He used intervals consisting of 20 seconds of maximum intensity exercise, followed by 10 seconds of rest. This cycle is repeated 8 times for a total of 4 minutes. And oh man, do they work. I use two various compound body-weight exercises (the more muscles and joints involved in a movement, the more caloric expenditure) for an 8 minute workout. It’s harder for me to do an 8-minute tabata than run for an hour and a half in the mountains. I try to do two during a workout. I’m working towards using 3 exercises for a 12-minute tabata and if I keep with it, maybe 4 for a 16-minute tabata, but that is probably beyond me. It’s hard to believe how effective this technique is for toning and limbering up and trimming down (and beatin’ the cr*p out of you). Cardio exercise, in general, is the best way to lose fat. The first few days that I tried tabata circuits with various exercises was SO discouraging but near the end of the second week I felt that, ‘Maybe I can do this.’
My first timed runs while in Chama this summer, on two favorite, pretty much constant uphill sections, were about 2 minutes and 5 minutes off last summer’s times. I was in Chama, running in the mountains for only a third of the time I was there last summer. After a couple weeks of tabata circuits, I beat my best times on running up these two hill stretches in the middle of my runs (one roughly 20 minutes and the other about 40 minutes). The tabata technique is a keeper.
There’s also, a nasty little device called the Gymboss. It was developed to prevent nice, gentle, fun-loving people from saying, “It can’t be 10 seconds already! I’ll wait a few more seconds before starting the ‘work’ phase of the cycle.” It’s a great unit that can be set for 2 intervals, work and rest, with a loud multiple beep or vibration going off after each. It can also be set for the number of cycles. After a couple days, I placed my Gymboss on a stump, backed off and shot it. I later came to realize I was being a wimp and ordered another one; they’re cheap. (^_^)


Meadow is always up for our daily walk. Even if she is inside sleeping, I’ll say, ‘Meadow, up for a walk?’ She’ll perk up, stretch, and come outside. Mesa also knows what the offer means but he doesn’t always want to go. He’ll tend to either stay and hang around the campsite or tag along for a while, then turn around and head back. He’ll be there when we wrap up our loop. It’s a treat when he chooses to go the whole way with us. He’ll always go the first couple times at a new spot to check it out, but then it’s like, been-there-done-that.

Presently I’m back in the Lander library posting this entry and doin’ the town thing. Then it’s back for another week in the Winds and on to Idaho with probably a resupply in Jackson. At least I have a ‘90’s edition of DeLorme for Idaho.

‘You have brains in your head, and feet in your shoes.
You can steer yourself any direction you choose.’ Dr. Seuss


RVwest article ‘Following a Free Spirit’
FOR INDEX OF POSTINGS GO TO JULY 2006

Tuesday, July 12, 2011

bone marrow transplant, the stairwell saga
and newly weds




One fall day a guy crashed his mountain bike up in the Wasatch Mountains outside of Park City, UT. A lower leg swelled up pretty bad from all the subsurface bleeding. He went to the doctor and was told to stay off the leg as much as possible and go to physical therapy to have all the dried blood worked out of the system. The following spring the same thing happened but the guy saw his regular doctor at the Park City clinic, who happened to be a friend, and told him that it was a pretty easy crash and the leg should not be lookin’ this bad. The doctor took a blood sample. Around 10:00 that night, the guy got a call from his doctor who apologized for calling so late but he knew his friend would likely be out the door at dawn. The doctor said, ‘It looks like you have leukemia.’ ‘What’s that mean?’ ‘Well, if you don’t do something about it, you’ll be dead within 3 years.’ The doctor knew he had to say something to get through to his friend or his friend would probably blow it off. The doctor had called down to the University of Utah medical center and set up an appointment for his friend the next morning to see a hematology/oncology specialist to confirm the diagnosis with a bone marrow biopsy. With a white blood count of 184, it was pretty much a given. And yep, it was.

Blood cancer (leukemia) starts with the nine/twenty-two translocation. One arm of the #9 chromosome breaks off along with an arm of the #22 chromosome, translocate, fuse on, and from that point on you’re screwed. The white blood cells are no longer able to fully develop before being released into the blood stream so they can’t do their job. The body tries to compensate by sending out more and more white cells, hence a count of nearly 200 as opposed to a normal count of 5. Not good. The white cells take up a lot of room so the other counts start going down. Like going from a hematocrit count of 47 down to 27 or lower. Does not do a whole lot for one’s energy level.

The doctors can keep you above ground for a couple of years with drugs but at some point one will need a bone marrow transplant. There’s no cure for blood cancer. Once the patient decides to go for it and a donor is found, the fun starts. There’s a week of intense total-body irradiation at mega doses (you have NO idea of the long-term effect of THAT procedure). It’s not the localized outpatient radiation treatments that are the norm. They take you 3 floors underground through a door thicker than a bank vault. You straddle a saddle and are strapped between four upright posts. Then everyone bolts, this huge door hydraulically closes and they watch you on video camera. This guy did this twice a day for a total of an hour and a half each day. Not the healthiest environment. Then there’s a week of mega chemo followed by a week trying to keep you alive while that stuff works its way out of the body. The treatment, hopefully, kills off all the leukemia cells. But then again, the body loses its ability to make blood. Not good. The patient receives liters and liters of blood over the next few months. This most assuredly brings on some concern.

All this also leads to losing one’s taste buds. Isn’t that cool? For a couple weeks food, and even water, is just plain unpalatable. Most patients just suck on ice cubes. When you feel like eating again, it’s not encouraging. Even applesauce tastes like cardboard. Juice is just as bad.

The lab takes out over a liter of bone marrow from the donor and by the time they work it down, the recipient gets only about 2 tablespoons. You’re layin’ there askin’, ‘You all sure that’s gonna be enough?’ Somehow these new cells know how to work their way into the bones and start reproducing. The new cells stick together when they touch one another and these small groups get larger and larger until they fill the bones. BUT there is something called GVHD (graft versus host disease). The incoming cells do not recognize the new body as host so they don’t start to graft and produce. Not good. Actually, there are a lot of ‘not good’s’ during this whole thing.

The transplant did not start off well for the doctor’s friend. Within 5 minutes they had shoved an oxygen hose up his nose and were packing him in ice. Not good. There followed the worst week of my life. Only time I ever contemplated doing myself in. I swear there was not one person on staff that would have bet a plug nickel on my chances of surviving for very long. I was in that room for a month and a half hooked up to IV bags through a Hickman line into my heart. The wall behind the bed was perforated with air blowing through it. My visitors had to stay downwind since I had no immune system whatsoever. They also had to wash their hands in the sink before coming past the curtain into my side of the room. Like where am?!
No access for me to running water for six weeks—no sink, no shower, no flushing toilet. And during this time, every muscle in my body atrophied. Talk about major setbacks.

One night one of the Hickman line clips opened and there I was sleeping with blood pumping out and soaking the bed. The wetness woke me up. That happened twice. Another ‘not good.’ I don’t mind waking up if I have to pee but … Two other nights I woke up with the IV line wrapped around my neck.
I felt SO weak. It was even quite an effort just to use the spirometer whenever it was brought in. One had to blow into it periodically to keep one’s lungs clear. I was having WAY too much fun.

I had friends, acquaintances, co-workers, and others visit me. There was not a whole lot of stimulation in the room (other than keeping track of how many times the helicopter landed outside my window each day) so I really listened to what people were saying. Ever realize how many canned statements, banalities, trite little phrases, clich├ęs, platitudes we have in American English? Responses such as, ‘Everything will work out.’ Reassuring words sound so hollow when they don’t jive with reality. A friend suggested to me that I should desist from referring to them as ‘parrot responses’ or ‘knee jerk statements.’ Even though that is exactly how I look at them. But then again, my social skills are not near the top of the heap. Start to listen and you will hear dozens of them covering all kinds of topics. I REALLY came to dislike such statements. If a person does not want to take the time to come up with something on his own, words to make it meaningful and personal, he/she just grabs a canned one and throws it out. Thank the gods most of my friends knew better. At times I myself, don’t know what to say to someone. So, depending on the situation, I might say something like, ‘I don’t know what to say, but I care.’ Then the person at least knows I’m thoughtful enough to stop and think before speaking. Some people appreciate little things like that. Especially if they are lying there as close to death as they’ve ever been. One friend came in, looked at me and said, ‘You look like sh*t. Are you going to be around much longer?’ I loved it. Definitely got me laughing. Something I really needed for my health. Another said, ‘Are you on your way out? Can I have one of your motorcycles?’ Possibly the best gift I got while in there was laughter. However, being able to finally leave the room after a month and a half, sitting up in a wheelchair rather than rolled out under a sheet was also pretty cool.

I was planning to receive jukai from my zen teacher within a couple months after being released. One of the tasks to do beforehand, was to copy the lineage from Buddha down to my teacher on a parchment chart. I wanted it to look nice but my hands constantly shook from all the meds I was on. It took me a week to copy the eighty-something names of the patriarchs since I had trouble controlling the shakes after only a couple of names. One of life’s little curves. Then there was the rakusu, a short monk’s robe that came into fashion when monks first started to be persecuted (they could easily hide it). A person receiving jukai has to hand stitch one. There was no way the medical staff was going to let me work with scissors, straight pins and a needle when I did not have any platelets. Luckily my teacher gave permission for Genshin, a monk at the Kanzeon Zen Center, to make mine for me. The ceremony is generally performed in a group when a number of people are ready to receive. Since being in groups was definitely not a good place for me to be at the time, the ceremony was held in the zendo with only Genpo Roshi, Genshin, and me. Pretty cool. I still have problems following the precepts but at least it’s a stellar goal to strive for.

During the last week, a nurse asked if I wanted to go outside. I don’t think any child, even on Christmas morning, could have been more excited than I was at hearing that offer. So—on with the mask, into the wheelchair and out of the room. Yee-ha! After a bit I asked if I could try walking. Probably wasn’t too smart since my platelet count was like zero (doctors won’t even operate on a patient unless their count is at least 50). Surprisingly I got a yes. I managed to walk maybe 40 yards and was totally maxed. Thank the gods for wheelchairs.

When my time was near for me to leave the hospital, there was a problem. They were not pleased with my living situation so they moved me over to a medical apartment on campus for an additional two and a half months. FOUR MONTHS I was away from home. There had to be a caregiver with me every night. I did not cope well with that. I also wore an alarm on my wrist in case I had a problem during the day and couldn’t get to the phone, I could activate the alarm. What IS all this—shouldn’t I be out skiin’ up in the Wasatch?

Then I found out about the nails. Remember the intensive treatment prior to the transplant? Well, I learned the body stops making new material for toe and fingernails. BUT, the nails continue to grow out, with no new material following along behind or in from the sides. Not good. The edge that you see beyond the end of the finger is called the ‘free edge’. Well, the back and sides of you nails develop free edges. Can you guess where this is going? Yep, at some point you are going to catch a free edge on something and the whole nail is going to rip off. Wakes you right up. The good thing is—it only happens twenty times. Never thought I’d be scared to take my socks off. This was all SO much fun.

Once the white cells started reproducing I was allowed to go into stores, as long as I wore a mask and went during off hours. With a white cell count of like ONE, I wasn’t about to argue with the restrictions. Talk about being isolated from society. You know when you walk into a store and employees ask if you need any help? If you are wearing a mask, forget it. It’s like you are invisible. One good thing about wearing the mask is when you are in a checkout line. You know how sometimes the person behind you crowds your space and is breathing down your neck? Not with the mask. People stand a good four feet behind you. It can be pretty humorous at times.

Nurses told me about BMT recipients who got through the procedure and then proceeded to bring about their own deaths. I think it was their way of saying, ‘Don’t be stupid.’ One guy went right back out into bars, smoking and not wearing his mask. He was dead in a couple weeks. Another went out golfing and got a real bad sunburn. This accelerated his GVHD to level 4 and he was dead in two weeks. I’ve had level 3 and man does that rot big time. Get to level 4 and you are probably going to die. Another survivor was just unfortunate. He went out pheasant hunting on his ATV, crashed and skinned his palms. He knew enough to clean them well but mold from the soil got into his system and he was dead within a month. Remember, one has no immune system during the months after a BMT.
This was how it was when I went through it. There have been numerous improvements to the procedure since then—stronger drugs, much shorter hospital stays and whatnot.

Another ‘not good’ was being weaned off the steroids and immuno-suppressants too quickly over the next nine months. GVHD flared up and they had to put me back on all the meds and start all over. I ended up on medical leave for two years. And yep, it was back to the mask. I get all tingly just reminiscing. (^_^)

One does not hear as much about bone marrow transplants as say, heart transplants. Not nearly as many adults make it through a BTM as through a heart transplant, which is pretty much a straightforward part replacement and one is out of the hospital within a week. They have a high success ratio with heart transplants. I was pretty healthy (well, except for the leukemia) when I went in for my BMT but my chances of getting through it and surviving the first year was only 29%. Not good. I talked with four heart transplant recipients over the years, sharing stories, and getting into some of the humor of it all. All four said they would rather go through another heart transplant rather than have a BMT. I agree. I sure would not want to go through one again. Some choose not to go through a BMT after they hear what it will be like. That’s a death sentence. I don’t know, I feel one should go for it. It sure isn’t pleasant but it sure is nice having a shot at staying above the ground.

Prior to making my decision to go ahead with the BMT (my doctor wanted me to wait), I talked to doctors, nurses, did extensive research on the web, and talked to three people who went through a BMT (one died within a year, another died in her second year, and I lost track of the third one. What’s even more sad, the two who died were both only in their 20’s and each had a small child.). After all this I thought I had a pretty good idea of what I was getting into. I came to find out I was clueless. No one mentioned the constant fear, among other things. Remember, one loses their immune system. You go out on a windy day, walk past a construction sight, smell the roses or sniff the cottage cheese to see if it is still good, and you breath in some mold spores, even common aspergillus, that you cannot even see—you’re dead within two or three weeks. A few years ago they did not have a way to deal with mold in the lungs. Now they do.

For months I had to make daily visits to the BMT clinic once they let me out of the BMT unit, getting my childhood immunization shots, more bone marrow biopsies, way too many chest x-rays, and whatnot. I walked in once and there were two other survivors sitting there. We were all bald, with a fat hump at the base of the neck and jowls from the steroids. I said, ‘We should rob a bank. If they put us in a lineup, no one could single us out since we all look the same.’ I thought it was funny but the two guys didn’t even smile. The nurses got a chuckle out of it, however. I tried my best to get the nurses laughing whenever I could. The stellar school where I was teaching let me take the laptop I was issued with me to the hospital so I was frequently checking out joke sites looking for stories I could tell the nurses.

After a couple weeks, I got off the elevator at the fourth floor and walked the two flights of stairs up to the fifth floor where the BMT clinic was. Thought I was gonna die. Man, it was tough gettin’ up those stairs. For the next two weeks of my daily visits to the clinic, I got off on the fourth floor and struggled up to the fifth. The third or fourth week I got off on the third floor. Good grief, it was like starting all over again. Every once in a while as I was struggling up the stairs, wearing my mask, huffing and puffing, pulling myself up with the hand rail, bent over like an old man with my eyelids drooping from exertion, someone on the hospital staff would pass me and say some words of encouragement. I thought that was pretty cool. I’m sure an occasional moan or whimper could be heard in that stairwell. I was hurtin’. Over the next couple months I kept working at getting off at lower floors. At each one it was almost like starting over. I was still required to come to the BMT clinic daily (I used to have a life). Occasionally, I just did not have the energy to do the stairwell but, if I remember right, not matter how bad I felt, I at least got off on the fourth floor (after I had a month of this under my belt). At the end I was able to walk up from the ground floor with less effort than that first day when I got off on the fourth floor and struggled up those first two flights of stairs to the fifth. Never thought I would be using a hospital stairwell to build up my strength.

I had to go down to the pulmonary lab a couple times to blow through the hoses. Even something as easy as that tired me out. One time they said they needed to draw some arterial blood. I’m thinkin’ no big thing. The blood lab was frequently drawing 4, 5, or 6 vials of my blood. This was when I learned there was a difference between drawing blood from a vein and drawing blood from an artery. A big difference. I’m talkin’ pain here—intense pain. Who would have thought? The tech told me this was going to hurt. That was my first clue that this would be different. He said a couple weeks ago someone started screaming in the lab and the staff all ran down the hall to the room where it was coming from. A lady was having some arterial blood drawn. This was not sounding good. He said, ‘Okay here we go. Try to stay relaxed.’ You can probably guess what I immediately did when he stuck the needle into a wrist artery. ‘Relax!’ How can it make so much difference between drawing blood out of an artery. Luckily I only had that done once. I learned later that day that no one had called for that test. All for nothing.

The whole thing was a bit more than I could cope with. I asked to be put on anti-depressants. Life mellowed out. The lows weren’t as bad but the highs were dampened down. I asked to be taken off the meds after three or four months. To me, going through days on an even-keel is not living—it’s merely existing.

Then for the next two years I tried to cope with medical complications and depression. By then I was WAY lazy and unmotivated. Every once in a while I’d get psyched to begin exercising. That generally lasted less than a week and was followed by a couple months or more of living like a slug. This went on for a few years. I was in my fifties and SO out of shape that I had the mindset ‘it was hopeless.’ Almost all of us have areas in our lives that we’d like to change. Sometimes we go for months or years stuck with wanting to change, but never seeming to get off the ground. It rots. A push is needed. For me it might have been self-disgust. It finally started to sink in that I was the only one responsible for my days. I really did not want to waste yet another year so I finally started to make some progress. The sands only run one way.

Well, enough. I think you get the idea. But I just pointed out some of the highlights, there’s plenty more, like when they went to dig out the Hickman line that had been in my chest for over a year and a half (I needed to hook myself up to nightly IV bags).

July humor—Newly Weds

After this guy married, he ordered his wife to keep the house clean, dishes washed, lawn mowed, laundry washed, and hot meals on the table for every meal. The first day he could not see if any of this was done. The second day he still could not see if this was being done. But on the third day, some of the swelling had gone down and he could see a little out of his left eye, and his arm was healed enough that he could fix himself a sandwich and load the dishwasher.

When it is dark enough, you can see the stars. Charles A. Beard


RVwest article ‘Following a Free Spirit’
FOR INDEX OF POSTINGS GO TO JULY 2006